The BKPA gives a cautious welcome to these new guidelines which make it clear that the wishes of the dying person must be heard and respected; we believe that everyone should be treated as an individual, and that palliative treatment and intervention must be appropriate and not cause unnecessary distress. Kidney patients have the right to a good death, and many will need specialist palliative care to address the predictable effects of death from kidney failure. This level of supportive care can only be provided by suitably trained staff, in particular pharmacists. There is further work to be done in this area.
The full guidelines are available here http://www.nice.org.uk/guidance/ng31
There is a version of the guideline for people using services, carers and the public here ‘Information for the public’
For an end of life care framework in advanced kidney disease see http://www.nhsiq.nhs.uk/11739.aspx